What ALS Looked Like To Me

ALS is a big ugly evil monster. Or at least that’s how I imagine it. It attacks its victims’ motor neurons, leaving sensory function and cognitive abilities intact. In other words, it attacks its victims’ ability to control movement, gradually taking away communication and the ability to swallow, walk, control the hands, and eventually, even breathe. All the while, the victim can still feel and think normally. The frustration and fear this monster causes is unimaginable. Now let me tell you my story. My paternal grandmother died of ALS when I was 16.  Her disease wasn’t diagnosed until a few days before she died.  How that happened in 1990, I don’t know.  I wish I could discuss that with a…